Batten Disease is a rare inherited disorder of the nervous system with no current treatment or cure.  Children and adults with Batten disease have inherited genetic material from their parents that may take some years to come to bear in their everyday lives. And when it does, families are often in shock when they learn how a normal child or adult (Kufs form) could change quickly, and without seeming cause.  Those affected with Batten Disease suffer progressive neurological impairment, seizures, blindness, loss of motor skills, speaks, and finally loss of life.

Batten disease is one of approximately 50 diseases called lysosomal storage disorders (LSD), meaning that genetic mutations disrupt the cells ability to dispose of wastes. With Batten disease, cells are thrown out of balance with the build-up of proteins and lipids (fats).  Because of these damaged cells, patients with Batten disease suffer progressive neurological impairment and generally do not live longer than age 12.